Comments on: My Epstein Barr Virus Diagnosis

By: Chaz

Chaz — Mon, 28 Jun 2021 05:35:47 +0000

Good for you! You’re beautiful and your determination is inspirational!

By: Brenda

Brenda — Mon, 26 Apr 2021 12:36:53 +0000

My endocrinologist did blood tests and found it. I can’t remember which blood tests but she was the one who found that and hypothyroid. The testing for that is in this post I wrote:https://www.sugarfreemom.com/recipes/keto-and-hypothyroidism/

By: Erin Marie Flaherty

Erin Marie Flaherty — Sun, 25 Apr 2021 20:21:58 +0000

In reply to Teresa.

Would you mind telling how you got diagnosed? What tests? What subcategories within the tests? It’s been going on for six years, and whatever it is, it’s been getting progressively worse.
I’d appreciate any ideas.

By: Kate Ricci

Kate Ricci — Tue, 09 Mar 2021 15:42:08 +0000

I too have chronic EBV which has been called Fibromyalgia and CFS or ME in Canada. Finally and I say Finally a few years ago my TSH elevated and I was offered synthroid. OMG did I ever feel awful, I took a few days worth and couldn’t function at all. It was awful. I researched and found natural dessicated thyroid (Called Thyroid) and that changed my life for about 3 months. I felt alive again, leg pain was gone and I was lost weight. BUT I didn’t change my diet. So I researched more and cut out gluten. I was better but not good. Last year I found AIP and was strict for 30 days and felt amazing. It’s a rough go at first, I went into it cold turkey. Then I added back eggs, etc. and that is when it became a slippery slope and I got worse again. I am back on AIP now, will probably stay on it for a long while this time. I finally feel as if my body is telling me what it likes. Each of us is different, we have to learn to listen closely and keep a journal to see what is causing symptoms. I also did transdermal allergy testing and that was very helpful. Best of luck to you and everyone out there fighting this and other autoimmune conditions. Don’t give up, keep trying to live your best life.

By: Terence Battle

Terence Battle — Thu, 18 Feb 2021 00:24:34 +0000

In reply to JH.

Hi
I know this post is old but my body feels like its shutting down ..What protocol did you use that helped you?If you see this I truly would appreciate knowing,
Terry

By: Dennis Ugwu

Dennis Ugwu — Fri, 11 Dec 2020 17:26:32 +0000

In reply to Sheena.

You are not alone, that is how I feel right now, persistent fatigue, myalgia, axillary lymphadenopathy and persistent lymphocytosis on my full blood count.
Please I am available for any advice based on your experience.
Thank you

By: Esteban

Esteban — Fri, 22 May 2020 01:59:23 +0000

In reply to Christopher.

Hi, could you elaborate more on this please? … when you say Oil, and any links to hydrogen peroxide internal use thanks

“the CS with Riffing and Oil is a powerful combination and when you learn of the power of OXYGEN via Hydrogen Peroxide [add it to CS when drinking] the results are amazing.”

By: Christina Herren

Christina Herren — Tue, 21 Jan 2020 01:45:21 +0000

I have the same thing. I’ve known or suspected Epstein-Barr for a while and recently my labs showed hypothyroidism. I will be test for hashimotos next week. I don’t have hypes but I get chronic sore throats every year Jan-May. I’m always tired and have no motivation. Cold all the time, dry hair and skin. It sucks. I hope I can get the right treatment and prevent any worse problems from development. I’ve been keto for a year in half now. I’ve tried to transition into carnivore but something are tough to give up, like tea and chocolate.
___

By: Sheena

Sheena — Wed, 15 Jan 2020 23:35:44 +0000

I had mono as a teen and over the last year and a half have had unexplained weight loss, pain throughout my body, fatigue, rashes that look very similar to yours, and puffy eyes. I have been on thyroid meds for 10 years or more due to having part of my thyroid removed because of a mass. Last week, a coworker told me about her daughter’s diagnosis of EBV and I started reading about it because of so many similarities. I got tested today so I’m waiting on the results. I know they can’t treat it, but just knowing it’s not just in my head helps me feel better.

By: Kirstin Mitchell

Kirstin Mitchell — Thu, 09 Jan 2020 16:22:25 +0000

https://goop.com/wellness/health/the-medical-medium-and-whats-potentially-at-the-root-of-medical-mysteries/

By: Brenda

Brenda — Thu, 26 Sep 2019 12:05:01 +0000

In reply to Renee. That's crazy! I'm so sorry it took so long to get properly diagnosed! I'm glad to hear you are also doing better now!

By: Renee

Renee — Thu, 26 Sep 2019 00:57:30 +0000

Wow! Your story is insane and frankly, scary. I’m happy to hear you are finding some relief. You really do have to be your own advocate no matter how much your doctor thinks you’re wrong!!!

I recently learned this the hard way. Three years ago, at age 30, I was diagnosed as Type 2 diabetic- not a surprise, diabetes seems to run on both sides of my family. I soon became very unhappy with my doctor due to his choice of medication for me. I had no improvement but severe side effects; now that medication is under serious scrutiny. I changed to a fresh-out-of-residency doctor (the only one accepting new patients in my area). He didn’t question my original diagnosis, at first. After nearly a year, he started to wonder if I had been misdiagnosed or if I had another condition contributing to my poor health. First he tried a different medication regiment. I showed a little improvement but then took a major backslide.

After nearly two years, my second doctor was at his wits end. He referred me to an endocrinologist. FINALLY, someone did the blood work and found out that I am actually a Type 1 diabetic. I finally felt vindicated because I, too, was always tired, sick, and barely functioning. I kept saying it had be something else. It is not normal to feel like that. Misdiagnosis is a serious problem. It’s also incredibly scary. I pray for anyone struggling with this path.

By: Donna Fordham

Donna Fordham — Mon, 02 Sep 2019 03:45:25 +0000

In reply to Brenda. Epstein Barr Virus might be in your body along with Lyme--did you test for that as well? Also, EBV responds well to the Spooky2 rife frequency machine and so does Lyme, herpes and every other pathogen. Pathogens cause disease and illness. Synthroid isn't the answer, it just helps your SYMPTOMS. Go for a real cure with some of these alternative therapies like colloidal silver and frequency generators. Doctors won't cure you!

By: Brenda

Brenda — Fri, 12 Jul 2019 12:59:33 +0000

In reply to Susie Watson. I've been using a personal trainer for about 2 years so I never did stop even when I got diagnosed.

By: Susie Watson

Susie Watson — Thu, 11 Jul 2019 22:55:36 +0000

Ditto to all the thanks, I am also sorry you have had to endure this for so long and not have a good physician in your court. What I need to know is what kind of exercise are you doing? I am a fitness instructor, currently on a leave of abscence due to the recurrence of EBV. Thank you again.